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PRODID:-//FAIR Time for Women Coalition - ECPv6.15.13.1//NONSGML v1.0//EN
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X-ORIGINAL-URL:https://ftfw.org
X-WR-CALDESC:Events for FAIR Time for Women Coalition
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BEGIN:VTIMEZONE
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240316T150000
DTEND;TZID=America/New_York:20240316T160000
DTSTAMP:20260406T075715
CREATED:20240418T164635Z
LAST-MODIFIED:20240418T164635Z
UID:4962-1710601200-1710604800@ftfw.org
SUMMARY:FAIR Communications Working Group
DESCRIPTION:FAIR Communications Working Group Zoom Meeting
URL:https://ftfw.org/event/fair-communications-working-group-2/
LOCATION:Online Zoom Event
CATEGORIES:FAIR,Online Event
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240321T200000
DTEND;TZID=America/New_York:20240321T210000
DTSTAMP:20260406T075715
CREATED:20240418T154450Z
LAST-MODIFIED:20240418T161249Z
UID:4930-1711051200-1711054800@ftfw.org
SUMMARY:Her Care\, Her Choice - Women & Hemophilia B\, a Multi-Part Series
DESCRIPTION:Join us as we amplify women’s voices in hemophilia B care! Let’s get together to share strategies for women and girls to articulate their needs and advocate for comprehensive treatment. Also hear from experts and advocacy mentors in this series that equips women with the tools to navigate healthcare challenges confidently within a supportive community. March 21\, 2024 – 8:00 pm EST.
URL:https://ftfw.org/event/her-care-her-choice-women-hemophilia-b-a-multi-part-series-5/
LOCATION:Online Zoom Event
CATEGORIES:Online Event
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240327T200000
DTEND;TZID=America/New_York:20240327T210000
DTSTAMP:20260406T075715
CREATED:20240418T154358Z
LAST-MODIFIED:20240418T154358Z
UID:4928-1711569600-1711573200@ftfw.org
SUMMARY:Online FAIR Time for Women Ladies Night Out
DESCRIPTION:Join us as we fellowship with one another and discuss women bleeding disorders issues. March 27\, 2024 – 8:00 pm EST.
URL:https://ftfw.org/event/online-fair-time-for-women-ladies-night-out/
LOCATION:Online Zoom Event
CATEGORIES:FAIR,Online Event,Support Group
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240411
DTEND;VALUE=DATE:20240414
DTSTAMP:20260406T075715
CREATED:20240418T154227Z
LAST-MODIFIED:20240418T154227Z
UID:4925-1712793600-1713052799@ftfw.org
SUMMARY:HFA Symposium
DESCRIPTION:Hemophilia Federation of America’s 2024 Symposium.
URL:https://ftfw.org/event/hfa-symposium/
LOCATION:HFA
CATEGORIES:In-Person Event
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240416T150000
DTEND;TZID=America/New_York:20240416T160000
DTSTAMP:20260406T075715
CREATED:20240418T163820Z
LAST-MODIFIED:20240418T163820Z
UID:4958-1713279600-1713283200@ftfw.org
SUMMARY:FAIR Communications Working Group
DESCRIPTION:FAIR Communications Working Group Zoom Meeting
URL:https://ftfw.org/event/fair-communications-working-group/
LOCATION:Online Zoom Event
CATEGORIES:FAIR,Online Event
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240423T150000
DTEND;TZID=America/New_York:20240423T160000
DTSTAMP:20260406T075715
CREATED:20240418T163713Z
LAST-MODIFIED:20240418T163713Z
UID:4956-1713884400-1713888000@ftfw.org
SUMMARY:FAIR Data & Research Working Group
DESCRIPTION:FAIR Data & Research Working Group Zoom Meeting
URL:https://ftfw.org/event/fair-data-research-working-group/
LOCATION:Online Zoom Event
CATEGORIES:FAIR,Online Event
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240508T200000
DTEND;TZID=America/New_York:20240508T210000
DTSTAMP:20260406T075715
CREATED:20240429T163137Z
LAST-MODIFIED:20240429T163137Z
UID:4965-1715198400-1715202000@ftfw.org
SUMMARY:FAIR Ladies Night Out Online Event
DESCRIPTION:Join Us as we come together through Zoom to talk about issues for women\, girls\, and those assigned female at birth with bleeding disorders. Click below to register for this event!
URL:https://ftfw.org/event/fair-ladies-night-out-online-event/
LOCATION:Online Zoom Event
CATEGORIES:FAIR,Online Event,Support Group
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240509T200000
DTEND;TZID=America/New_York:20240509T210000
DTSTAMP:20260406T075715
CREATED:20240418T151859Z
LAST-MODIFIED:20240418T151859Z
UID:4908-1715284800-1715288400@ftfw.org
SUMMARY:Her Care\, Her Choice - Women & Hemophilia B\, a Multi-Part Series
DESCRIPTION:Join us as we amplify women’s voices in hemophilia B care! May 9\, 2024 – 8:00 pm EST. Let’s get together to share strategies for women and girls to articulate their needs and advocate for comprehensive treatment. Also hear from experts and advocacy mentors in this series that equips women with the tools to navigate healthcare challenges confidently within a supportive community. Visit the website for details.
URL:https://ftfw.org/event/her-care-her-choice-women-hemophilia-b-a-multi-part-series/
LOCATION:Online Zoom Event
CATEGORIES:Online Event
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240513T160000
DTEND;TZID=America/New_York:20240513T170000
DTSTAMP:20260406T075715
CREATED:20240723T220546Z
LAST-MODIFIED:20240723T220546Z
UID:5015-1715616000-1715619600@ftfw.org
SUMMARY:Hermanas de Sangre
DESCRIPTION:Join Fernando F. Corrales-Medina\, MD FAAP and other Latina women on May 13th from 4-5pm EST. Use the links below to find out how to sign-up!
URL:https://ftfw.org/event/hermanas-de-sangre/
LOCATION:Online Zoom Event
CATEGORIES:Online Event
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240516T140000
DTEND;TZID=America/New_York:20240516T150000
DTSTAMP:20260406T075715
CREATED:20240418T152830Z
LAST-MODIFIED:20240418T152830Z
UID:4912-1715868000-1715871600@ftfw.org
SUMMARY:Understanding Factor Levels and Bleeding in Hemophilia Genotype-Positive Females
DESCRIPTION:Free CDC Webinar open to healthcare providers\, pharmacists\, and public health researchers who desire more information about blood disorders. May 16\, 2024 – 2:00 pm EST. Visit website to register.
URL:https://ftfw.org/event/understanding-factor-levels-and-bleeding-in-hemophilia-genotype-positive-females/
CATEGORIES:Healthcare Professionals,Online Event
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240612T200000
DTEND;TZID=America/New_York:20240612T210000
DTSTAMP:20260406T075715
CREATED:20240418T153525Z
LAST-MODIFIED:20240418T153525Z
UID:4915-1718222400-1718226000@ftfw.org
SUMMARY:Her Care\, Her Choice - Women & Hemophilia B\, a Multi-Part Series
DESCRIPTION:Join us as we amplify women’s voices in hemophilia B care! Let’s get together to share strategies for women and girls to articulate their needs and advocate for comprehensive treatment. Also hear from experts and advocacy mentors in this series that equips women with the tools to navigate healthcare challenges confidently within a supportive community. June 12\, 2024 – 8:00 pm EST. Visit website to register.
URL:https://ftfw.org/event/her-care-her-choice-women-hemophilia-b-a-multi-part-series-2/
LOCATION:Online Zoom Event
CATEGORIES:Online Event
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240626T200000
DTEND;TZID=America/New_York:20240626T210000
DTSTAMP:20260406T075715
CREATED:20240516T185205Z
LAST-MODIFIED:20240516T185205Z
UID:4971-1719432000-1719435600@ftfw.org
SUMMARY:FAIR Online Ladies Night Out Event
DESCRIPTION:Join us for an evening of fellowship with other bleeders as we discuss women bleeding disorder issues! All are welcome to attend. \nPlease register below.
URL:https://ftfw.org/event/fair-online-ladies-night-out-event/
LOCATION:Online Zoom Event
CATEGORIES:FAIR,Online Event,Support Group
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240801T200000
DTEND;TZID=America/New_York:20240801T210000
DTSTAMP:20260406T075715
CREATED:20240418T153636Z
LAST-MODIFIED:20240418T153636Z
UID:4917-1722542400-1722546000@ftfw.org
SUMMARY:Her Care\, Her Choice - Women & Hemophilia B\, a Multi-Part Series
DESCRIPTION:Join us as we amplify women’s voices in hemophilia B care! Let’s get together to share strategies for women and girls to articulate their needs and advocate for comprehensive treatment. Also hear from experts and advocacy mentors in this series that equips women with the tools to navigate healthcare challenges confidently within a supportive community. August 1\, 2024 – 8:00 pm EST. Visit website to register.
URL:https://ftfw.org/event/her-care-her-choice-women-hemophilia-b-a-multi-part-series-3/
CATEGORIES:Online Event
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240828T120000
DTEND;TZID=America/New_York:20240828T130000
DTSTAMP:20260406T075715
CREATED:20240723T215741Z
LAST-MODIFIED:20240723T215741Z
UID:5007-1724846400-1724850000@ftfw.org
SUMMARY:The ECHO program - Recognition and Care for Women with Bleeding Disorders
DESCRIPTION:
URL:https://ftfw.org/event/the-echo-program-recognition-and-care-for-women-with-bleeding-disorders/
LOCATION:Online Zoom Event
CATEGORIES:Online Event
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240913
DTEND;VALUE=DATE:20240916
DTSTAMP:20260406T075715
CREATED:20240418T153944Z
LAST-MODIFIED:20240418T153944Z
UID:4919-1726185600-1726444799@ftfw.org
SUMMARY:FWGBD 2024
DESCRIPTION:Long Beach\, California. Join the Foundation for Women & Girls with Blood Disorders for our biennial educational conference for healthcare professionals dedicated to the care of women and girls with blood disorders. September 13-15\, 2024. Visit website to register.
URL:https://ftfw.org/event/fwgbd-2024/
LOCATION:Long Beach\, California
CATEGORIES:Healthcare Professionals,In-Person Event
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240918T150000
DTEND;TZID=America/New_York:20240918T160000
DTSTAMP:20260406T075715
CREATED:20240829T163852Z
LAST-MODIFIED:20240829T163852Z
UID:5048-1726671600-1726675200@ftfw.org
SUMMARY:FTFW Congressional Briefing
DESCRIPTION:Join us in Washington\, DC as we join Congresswoman Abigail Spanberger for a Congressional Briefing on Women with Bleeding Disorder Awareness!
URL:https://ftfw.org/event/ftfw-congressional-briefing/
LOCATION:Rayburn Building\, Room 2075\, Washington\, DC\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240918T190000
DTEND;TZID=America/New_York:20240918T200000
DTSTAMP:20260406T075715
CREATED:20240723T215900Z
LAST-MODIFIED:20240723T220106Z
UID:5010-1726686000-1726689600@ftfw.org
SUMMARY:The ECHO program - Recognition and Care for Women with Bleeding Disorders
DESCRIPTION:
URL:https://ftfw.org/event/the-echo-program-recognition-and-care-for-women-with-bleeding-disorders-2/
LOCATION:Online Zoom Event
CATEGORIES:Online Event
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240926
DTEND;VALUE=DATE:20240930
DTSTAMP:20260406T075715
CREATED:20240701T181616Z
LAST-MODIFIED:20240701T181616Z
UID:5000-1727308800-1727654399@ftfw.org
SUMMARY:Women's Education & Empowerment Program
DESCRIPTION:The Hemophilia B Women’s Education & Empowerment Program is an outstanding success for women with hemophilia B\, mothers of children with hemophilia\, and spouses! This is a unique three-day experience\, during which women are given a safe space to share their journey with others and gain support. Held in Alpharetta\, GA. \nAll women attending benefit from the enhanced camaraderie and learn strategies for managing hemophilia B through all life stages. Attendees continue to stay on the cusp of innovation through the education and resources provided. They are empowered by the journey they take together\, provide each other with support not only during the program\, but on an ongoing basis\, and stand ready to deal with life’s challenges! \nDeadline to register is July 15\, 2025
URL:https://ftfw.org/event/womens-education-empowerment-program/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241003T200000
DTEND;TZID=America/New_York:20241003T210000
DTSTAMP:20260406T075715
CREATED:20240418T154054Z
LAST-MODIFIED:20240418T154054Z
UID:4923-1727985600-1727989200@ftfw.org
SUMMARY:Her Care\, Her Choice - Women & Hemophilia B\, a Multi-Part Series
DESCRIPTION:Join us as we amplify women’s voices in hemophilia B care! Let’s get together to share strategies for women and girls to articulate their needs and advocate for comprehensive treatment. Also hear from experts and advocacy mentors in this series that equips women with the tools to navigate healthcare challenges confidently within a supportive community. October 3\, 2024 – 8:00 pm EST.
URL:https://ftfw.org/event/her-care-her-choice-women-hemophilia-b-a-multi-part-series-4/
CATEGORIES:Online Event
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20241011
DTEND;VALUE=DATE:20241014
DTSTAMP:20260406T075715
CREATED:20240701T145847Z
LAST-MODIFIED:20240701T150151Z
UID:4995-1728604800-1728863999@ftfw.org
SUMMARY:2024 FAB
DESCRIPTION:The FAB conference is for women 18+ that live in the service areas of Gateway Hemophilia Association\, Midwest Hemophilia Association\, Nebraska Chapter of NHF\, or Bleeding Disorders of the Heartland. You must also: 1) have a bleeding disorder or 2) Diagnosed Carrier or 3) Spouse of someone with a bleeding disorder or 4) Parent or legal guardian of someone with a bleeding disorder to attend. Deadline to register is September 9\, 2024. The focus of the conference will be education\, personal growth\, and networking.
URL:https://ftfw.org/event/2024-fab/
LOCATION:Margaritaville Lake Resort\, 494 Tan Tar A Dr\, Osage Beach\, MO\, United States
CATEGORIES:In-Person Event
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241028T120000
DTEND;TZID=America/New_York:20241028T130000
DTSTAMP:20260406T075715
CREATED:20240723T220003Z
LAST-MODIFIED:20240723T220003Z
UID:5012-1730116800-1730120400@ftfw.org
SUMMARY:The ECHO program - Recognition and Care for Women with Bleeding Disorders
DESCRIPTION:
URL:https://ftfw.org/event/the-echo-program-recognition-and-care-for-women-with-bleeding-disorders-3/
LOCATION:Online Zoom Event
CATEGORIES:Online Event
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250110T080000
DTEND;TZID=America/New_York:20250110T090000
DTSTAMP:20260406T075715
CREATED:20250131T140248Z
LAST-MODIFIED:20250131T140248Z
UID:5127-1736496000-1736499600@ftfw.org
SUMMARY:Working Groups
DESCRIPTION:Meet and plan 2025 Projects
URL:https://ftfw.org/event/working-groups/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250206T160000
DTEND;TZID=America/New_York:20250209T090000
DTSTAMP:20260406T075715
CREATED:20241216T192511Z
LAST-MODIFIED:20241216T192511Z
UID:5112-1738857600-1739091600@ftfw.org
SUMMARY:The Female Factor Retreat
DESCRIPTION:The Female Factor Retreat is for those affected and connected in the bleeding disorders community. Ages 13+ (minors must be accompanied by parent/guardian) are invited to attend this boutique retreat experience focused on education\, skill building\, fun and rejuvenation. Set on the ocean cliffs of Santa Cruz\, you will not forget the sound of the waves crashing in your ears as you sleep or waking up to the sunrise from the east welcoming the new day. Day one will be exploring and dining as a group as we explore our host beach town. Day two will be education\, workshops and skill building. Enjoy the bonfire on the beach\, meals overlooking the surf and endless activities to suit every desire. Whole\, fresh\, locally sourced organic meals are cooked fresh for our group daily at this one of a kind retreat. \nEl Retiro del Factor Femenino está dirigido a las personas afectadas y vinculadas a la comunidad de trastornos hemorrágicos. Edades 12+ (menores de edad deben estar acompañados por un padre / tutor) están invitados a asistir a esta experiencia de retiro boutique centrado en la educación\, el desarrollo de habilidades\, la diversión y el rejuvenecimiento. Situado en los acantilados oceánicos de Santa Cruz\, no olvidará el sonido de las olas rompiendo en sus oídos mientras duerme o se despierta con el amanecer desde el este dando la bienvenida al nuevo día. El primer día nos dedicaremos a explorar y cenar en grupo mientras exploramos nuestra ciudad costera anfitriona. El segundo día se dedicará a la formación\, los talleres y el desarrollo de habilidades. Disfrute de la hoguera en la playa\, de las comidas con vistas al mar y de un sinfín de actividades para todos los gustos. En este retiro único en su género se preparan a diario comidas ecológicas\, frescas y de origen local para nuestro grupo.
URL:https://ftfw.org/event/the-female-factor-retreat-2/
LOCATION:Villa Maria Del Mar Santa Cruz California\, 21918 East Cliff Drive\, Santa Cruz\, CA\, 95062\, United States
CATEGORIES:In-Person Event
END:VEVENT
END:VCALENDAR